The reason that i’m blind is because a gypsy woman cursed me. You’re going to love this. The wheelchair and iPad and head wand don’t define who I am. Hi, my name is Sarah Dalton. I am 23 years old. – Hi – Do you want to take a picture with me? *everyone laughs* I have a rare syndrome called CHARGE syndrome and CHARGE syndrome is an acronym and each letter stands for a big medical term but pretty much, it affects all my senses and some of my organs. Hello, this is me getting glamorous for tonight’s fundraising event for Ronald McDonald house at the local pub up the road.
That’s the pub over there. Thank you for inviting me here to speak to you about my experience with Ronald McDonald house. Thank you and good night. My house is set up really well, it’s pretty accessible. Now we’re coming to my bedroom. I have a nice purple wall. These light switches outlined with white switch. Two big wardrobe doors which are easy to open and access with a lot of things in my wardrobe. I actually share a bathroom with my parents. The sensor light comes on so it’s easy to see. Now you may see that this is a pipe, actually. Dad had to do that because I was banging my head on the other spout so we changed it to a pipe. Ranch slider doors have a line in the middle of them so I can see if it’s shut or open because without those lines I probably wouldn’t know if the door shuttle open and walk straight into it.
My favourite gadget I have, well I like my phone and my Apple Watch. My Apple Watch, I’ve got a function I guess you call it, that I push it and it can help me find my phone. I wonder where my phone is? Oh I found it. I do really love my swim-spa. I use it to relax and exercise. I do the treadmill in there. I swim a lot in there. Chewing and swallowing, it’s hard for me to chew and swallow and well eat and talk and everything. So I have to be really careful with swallowing and I have to look out that if the food’s a bit too hard like I might not be able to eat a certain type of meat. That’s why I do like Shamrock quite a lot because, A – I know I can eat their stuff B – they’re always nice and helpful And yeah I just know that you know they’re never going to say that to me and also they’re quite patient. All right we’re going to cross the road. That’s another thing I’ve noticed too, up here there’s no yellow lines. Good examples of accessibility in my community would be like the yellow lines or the crossing being quite well done.
Crossing with the beep thing you know the thing that goes beep. That thing, that’s always good. And we’re finding a disabled park out the front. When I go out places I always use my cane and it’s just to help me feel what’s coming up but it’s also more to let people know that, yes, I am blind and I can’t see so I may walk into you. I feel like community, most people sort of know each other here. Which is quite nice and helpful. I was there buying food and the lady kind of helping me with the cards guiding me, I guess, through what to do because that’s helpful too because sometimes I find with those machines you don’t actually know what to do or you don’t realise you’re swiping the card the wrong way and that’s why it’s helpful. Yeah most people when you go into most shops around here are quite helpful or nice too. I’m on the way to horse riding. There’s the horses, hello. There’s the outdoor area. Looks like I’m with Whiskey today. Are we inside? Here’s Whiskey Hello Whiskey, today we’ve got jumping and whiskey’s pretty good at jumping. I’m wearing these hearing things, there’s hearing devices so we can hear the teacher while in our lesson. Well it was a great, fun lesson doing a lot of jumping and obviously that’s quite tiring and puffing out and I get puffed out a bit but it was really fun. You’re gonna have fun with this.